News
New book launched - Your Lymphoedema - Taking Back Control
The Lymphoedema Support Network (LSN) has just launched their new book which has been produced with the support and backing of CNS Denise Hardy and Professor Peter Mortimer.
It provides not only information about lymphoedema, but also answers to the questions that the charity gets asked frequently by those with lymphoedema and their families and carers.
It can be purchased from the LSN’s website www.lymphoedema.org and costs £15 + £3.50 p&p.
International Lipoedema Association (ILA) research launched
The International Lipoedema Association (ILA) has recently been launched to support research into this condition.
The ILA website www.theila.net offers access to further resources linked to lipoedema symptoms and to support those with lipoedema.
Interventional Procedures Report (IPR721) regarding the safe use of liposuction for lipoedema
The National Institute for Health and Care Excellence (NICE) published their Interventional Procedures Report (IPR721) regarding the safe use of liposuction for lipoedema in March 2022.
The report recognised the impact of lipoedema and the limited treatment options for lipoedema currently, but was unable to recommend the use of liposuction. It has recommended further research.
LNNI Easy Read guide endorsed by the British Lymphology Society
The Lymphoedema Network Northern Ireland (LNNI) project team were delighted to work with the ‘Telling it like it is’ (TILII) project. TILII is a group of adults with a learning disability who are keen to have their voice heard, and is part funded by the Belfast, South-Eastern and Western Health and Social Care Trusts, with groups operating within local communities and hospital settings. The full impact of the TILII work and outcomes achieved has resulted in them winning ‘The People’s Award’ at the National Learning and Disability Awards in Northern Ireland. This is supported by the Association for Real Change (ACR), which is committed to increasing the capacity of people with a learning disability to have a say in issues that affect their lives. In particular, we would like to thank Louise Hughes from TILII and Angela Crocker, SLT BHSCT, for their guidance and support with this development. It is fabulous to have it endorsed by the BLS and we hope that it will also be beneficial for other services.
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International Lymphoedema Framework's awareness project regarding diagnosis and management of children with lymphoedema
LNNI is very happy to be able to share the International Lymphoedema Framework's awareness project regarding diagnosis and management of children with lymphoedema.
We would welcome those who work with children to consider completing the survey which will look at both awareness education and also more specialist management. This would also be useful to those in clinical education.
I would be grateful if this could also be shared with your colleagues whose role may include either helping to detect or manage paediatric lymphoedema:
The launch support video is at https://scanmail.trustwave.com/?c=261&d=wLCx4pdm62O9ddJ9FHppAzYL15x9FrL6pZWmB3OPfQ&u=https%3a%2f%2fvimeo%2ecom%2f687948283
Launch of a new patient support website ‘Lymphoedema United’ and associated book ‘How to live well with lymphoedema – meet the experts’
Matt Hazeldine has just launched his new website www.lymphoedemaunited.com to bring together support and learning from both healthcare professionals, and more importantly, those living with lymphoedema.
His book is also available from the website or eBook from Amazon Kindle with 25% of profits going to the Lymphoedema Research Fund.
Matt presented at the British Lymphology Society’s (BLS) conference in October 2021, and the website will receive BLS professionally endorsed patient information on a regular basis.
New free BMJ Chronic oedema/Lymphoedema education module for GPs and other Health Care staff (1 hour of CPD)
The BMJ has launched a new education module for GPs and other Healthcare staff (especially those in primary care). This has been developed in partnership with the Lymphoedema Support Network (LSN) and will equip staff with knowledge and tools to support those living with lymphoedema, whether newly diagnosed or returning to your care after discharge from a lymphoedema clinic. The practical advice covers compression garments, skin care, weight management and cellulitis related to lymphoedema, and will support self-management for this long-term condition.
The free BMJ module is available from https://new-learning.bmj.com/course/10066074
Free online training - Clinical Pointers: managing lymphoedema and chronic oedema in primary care’
The Lymphoedema Support Network have launched a free module ‘Clinical Pointers: managing lymphoedema and chronic oedema in primary care’.
This is aimed at GPs, GP trainees, medical students and all other HCPs.
Managing patients with chronic oedema/lymphoedema can be challenging. Diagnosis, facilitating self-management, identifying and managing complications, and even finding the right compression garment on prescription software, can all present significant demands in the primary care setting. In this second of two modules, leading experts help to clarify some of the key aspects relevant to understanding, assessing, and managing chronic oedema/lymphoedema in primary care.
This free education module from the BMJ and Lymphoedema Support Network partnership can be found at: https://new-learning.bmj.com/course/10066074
British Lymphology Society’s guidance to help everyone become more active!
The British Lymphology Society’s have launched a set of guidance leaflets to help everyone become more active!
Get moving with lymphoedema - specific exercises
LSN's lymphoedema surgery research (CRL only UL and LL) - online focus groups7th and 14th July
The Lymphoedema Support Network (LSN) is working in partnership with the plastic surgery team at the Royal Marsden Hospital to develop research into lymphoedema surgery.
The first important part of this research is to gather patients’ views on lymphoedema surgery, and what surgical outcomes would be meaningful to them.
They are running 2 online discussion groups (for those with arm lymphoedema 7th July / for those with leg lymphoedema 14th July 21 – both at 6.00pm), and would like to make those who have lymphoedema as a result of a previous cancer diagnosis aware of this national project.
The LSN are eager for as many people to join as possible.
